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Blog Nemours Blog Coronavirus Ages & Stages Health Issues Staying Healthy Coronavirus Ages & Stages Health Issues Staying Healthy Contact Us Subscribe Nemours PATIENT STORIES 2 min read The Power of Community at Nemours Children’s Health Laura, Jess, Ginny, and Jasmine are remarkable mothers whose paths crossed through their children’s diagnoses. Through shared experiences and care teams, this group of women have formed lasting friendships. Their children, Charlette, Noah, Gino, and Jeremiah, share the diagnosis of osteogenesis imperfecta (OI) and receive compassionate care from the exceptional team at Nemours Children’s Hospital, Delaware. Under the guidance of dedicated clinicians such as Dr. Ricki Carroll, Dr. Jeanne Franzone, Tina McGreal, APRN, Licensed Genetic Counselor Andrea Schelhaas, Sarah Little, PA-C, Katie Harp, LCSW, and many more, these children are thriving in a nurturing environment full of hope. United by a common journey, Laura, Jess, Ginny, and Jasmine were introduced to each other via an online group for parents of children with OI. Through these Facebook groups dedicated to OI, they discovered a community where fears were conquered, victories celebrated, and wisdom exchanged. Laura recalls the moment when she first […] FEATURED POST Nurses Week: Liz Upadhyaya’s Journey from Marketing to Pediatric Nursing During Nurses Week, explore Liz Upadhyaya’s journey from marketing to pediatric nursing at Nemours Children’s Hospital in Delaware. ASSOCIATE HIGHLIGHT Nurses Week: Ashley Johnson’s Impactful Journey as a Tracheostomy Nurse Manager Celebrate Nurses Week with Ashley Johnson’s inspiring journey as Tracheostomy Nurse Manager at Nemours Children’s Hospital in Orlando. FEATURED POST Nurses Week: Celebrating Julia Haubrich’s Journey in Pediatric Oncology Celebrate Nurses Week with Julia Haubrich, a dedicated pediatric oncology nurse at Nemours Children’s Hospital, in Delaware. FEATURED POST Nurses Week: Katie McGill’s Journey to Pediatric Oncology Discover Katie McGill’s inspiring journey in pediatric oncology during Nurses Week at Nemours Children’s Health, Jacksonville. Subscribe to Our Blog Receive stories and resources just like these in your inbox! First and Last Name* Email Address* Please leave this field empty. Topics Ages & Stages Community Connection Coronavirus Featured Post Health Issues Positive Parenting Services & Specialties Staying Healthy Transplant Uncategorized FEATURED POST Nurses Week: Debby’s Journey of Growth and Compassion at Nemours Children’s Hospital, Delaware Experience the inspiring journey of Debby Miller, from Nursing Assistant to Associate Nurse Manager at Nemours Children’s Hospital, Delaware. ASSOCIATE HIGHLIGHT Nurses Week: Randi Danley’s Dedication to Pediatric Care in Pensacola Discover the journey of Randi Danley, a dedicated pediatric nurse at Nemours Children’s Health in Pensacola, as we celebrate her during Nurses Week. FEATURED POST From Patient to Pre-Med: Maddie’s Story At 13 years old, Maddie Walsh was diagnosed with melanoma. This unexpected turn led her to Nemours Children’s Hospital, Florida, where she found a supportive community that became like family. Maddie’s journey began with the discovery of a change in a mole she had since childhood. A dermatologist family member recognized the signs and urged her to seek medical attention. Following a biopsy and consultations with various pathologists, Maddie received the diagnosis of malignant melanoma from Chief of the Division of Plastic and Craniofacial Surgery, Dr. Brian Kellogg. I was 13 when I first heard I was going to see a plastic surgeon. I was very confused because I only knew them by the stereotypes on TV,” says Maddie. However, I quickly learned that was far from what Dr. Kellogg and his team does. When I first heard the word ‘cancer,’ my mind jumped to the worst. I was terrified. […] ASSOCIATE HIGHLIGHT Donate Life Month: Jamaica Pediatric Living Related Donor Liver Transplant Program Growing up in rural Jamaica, Dr. Judith A. Jones was inspired by the idea of helping others. In a community where the only female healthcare professionals she saw were nurses, her older brother’s encouragement sparked the realization that she, too, could become a doctor. It reinforces for me to this day how a casual comment can change the trajectory of a child’s life, making things possible that were not previously dreamt of,” says Dr. Jones. My big brother told me I could be a doctor, and so I did, because it was the way in which I believed I could help people. As a young girl, I had an overwhelming sense that I should help people when I grew up. My parents were incredibly hard-working and were professionals despite coming from humble beginnings. Their example and encouragement also led me to pursue medicine as my life’s work.” Her career led […] PATIENT STORIES Donate Life Month: Luca’s Story From the moment he was born, Luca has been full of surprises. He entered the world in February 2022, a month earlier than expected. Anticipating a baby girl, complete with a gender reveal celebration, Luca’s parents were surprised by his arrival. Their anatomy scan’s mistaken prediction left them pleasantly surprised by their baby boy. Shortly thereafter, concerns arose regarding Luca’s kidney health, along with some unfavorable lab results. Luca was transported to the NICU and later taken to Nemours Children’s Hospital, Delaware. When the doctors at Inspira Mullica Hill started to get an inkling that Luca had serious kidney issues, they recommended right away that we be transferred to Nemours Children’s,” says his mother, Cory. We appreciated their honesty so much, as they explained to us that they didn’t have the capability to deal with Luca appropriately. One doctor even said that if this was his child, he would have […] UNCATEGORIZED A Heart to Remember: Brayden’s Heart Transplant Story When Brayden was born, he was premature and was having a hard time gaining weight. His family took him to weekly weight checks with little to no change taking place. After a change of pediatricians, they were told he had a heart murmur. Brayden and his family were referred to Nemours Children’s Hospital, Delaware for further evaluation with the cardiac team. Brayden was diagnosed with dilated cardiomyopathy, requiring the initiation of medication to observe his response. With additional testing, the diagnosis of Barth Syndrome was confirmed. Barth Syndrome is a rare condition that causes an enlarged and weakened heart, weakness in muscles, frequent infections, and more. Due to his inability to gain weight, a G-tube, otherwise known as a Mickey button, was placed to provide extra calories and nutrition to Brayden which overnight feeds. Brayden received yearly cardiac catheterizations to monitor the function of his heart. In December 2014, when […] Previous 1 2 3 4 5 6 7 Next Page 1 of 30 1 2 3 4 5 Page 1 of 30 1 2 3 Page 1 of 30 Subscribe to Our Blog Receive stories and resources just like these in your inbox! First and Last Name* Email Address* Please leave this field empty. Topics Ages & Stages Community Connection Coronavirus Featured Post Health Issues Positive Parenting Services & Specialties Staying Healthy Transplant Uncategorized See More See Less Better health is a journey Learn about our vision Better health is a journey We’re on a journey to improve the health of children everywhere- from safe schools to supportive communities and healthy homes. Visit nemours.org ABOUT NEMOURS When you have questions about your child’s health, you want answers you can trust. Nemours Children’s Health System is here with those answers — and so much more. For decades, Nemours has been home to some of the top doctors and specialists in their fields. Now, we’re here to bring that caring and comprehensive expertise to you. Count on us for up-to-date insights on important topics in kids’ health. NAVIGATE All Articles Contact Us Privacy Statement Terms & Conditions Nemours.org...